The Long Illness
They told us it would pass
Two weeks.
A month.
Maybe a lingering cough.
Then the world moved on
and left some of us behind.
I remember the first disappearances.
Not people.
My life.
The distance I could walk.
The shower I could take.
The stairs I could climb.
The certainty that tomorrow
would resemble today.
At first I kept waiting
to wake up.
Waiting for the fever to break.
Waiting for the fatigue to lift.
Waiting for my body to remember
how to be a body.
Instead,
the walls of my room learned my name.
Morning and night traded places.
Weeks folded into months.
Months folded into years.
Outside,
the world reopened.
Inside,
I learned the geography of a bed.
I learned the weight of my own legs.
I learned how fear can arrive
without making a sound.
Not fear of dying.
Fear of staying.
Fear of waking up tomorrow
exactly like this.
Again.
And again.
And again.
People disappeared quietly.
Not because they were cruel.
Because illness is easier
to understand when it ends.
People know how to visit a hospital.
They know how to send flowers.
They know how to say,
“Get well soon.”
But what do you send
to someone who has been sick
for three years?
What do you say
when there is no finish line?
Some left because they stopped believing.
Some left because they were tired.
Some left because my illness
reminded them that bodies can break
without permission.
I don’t blame all of them.
But loneliness has a way
of counting every empty chair.
The hardest part wasn’t always the pain.
Sometimes it was doubt.
Being sick enough to lose your life
but not sick enough
for the world to see it.
Watching people debate
whether your suffering exists
while living inside it every day.
Being told to exercise.
To think positive.
To stop focusing on symptoms.
As if I hadn’t spent years
trying to claw my way back
to the person I used to be.
As if hope alone
could power damaged cells.
As if wanting recovery
was the same thing as recovery.
And still—
there were small rebellions.
Coffee.
A television glowing in the dark.
A text message.
A friend.
A stuffed animal on a pillow.
A day that hurt less.
A laugh that arrived unexpectedly.
Proof that even in isolation,
something inside me
refused to disappear.
I am not writing this
because I have conquered illness.
I am writing this
because I am still here.
Because millions of us are still here.
Because history is filled
with stories about survival,
yet somehow our story
keeps being forgotten.
We are the people
who vanished from our own lives.
The people watching through windows.
The people calculating energy
like currency.
The people who miss birthdays,
careers,
showers,
concerts,
road trips,
ordinary Tuesdays.
The people who became ghosts
while still breathing.
And still—
we remain.
Scared sometimes.
Angry sometimes.
Lonely more often than we admit.
But here.
Still here.
Waiting for science.
Waiting for answers.
Waiting for a world
that remembers us.
Waiting for the day
when surviving is no longer
the hardest thing we do.



I think this is Maci’s best work so far. She happens to be a true friend of mine, and I told her how much I liked this (offline) and encouraged her to write more of the same.
She has heightened my alliance with disabled people everywhere and taught me how to communicate with them, in addition to my alliance with trans humans, neurodivergent people (I’m one myself) and disenfranchised people in general. So, Maci has a very special place in my heart.
I know she reads all her comments, so I’ll say hi, and add a big heart.
❤️
Always thinking of you, Maci. I can't imagine the weight of it all. Sending love and hugs.